4p support group. We welcome parents, foster parents, relatives, and professionals working with 4p- children and their families. Our mission is to serve our membership by providing information, education and support. Our organization offers support networks, newsletters, bi-annual national conferences and regional gatherings. Our mission is to serve our membership by providing information, education and support; uniting families, researchers, and professionals; and promoting awareness and understanding of 4p- syndrome, with Wolf-Hirschhorn Syndrome as the main condition, and the related 4th chromosome abnormalities. org. Fill out the form below to be a 4p- Support Group member Will the 4p- Support Group be applying for an IRB in order to conduct research with the registry data? Yes! We are currently in the process of completing our application. Only parents and legal guardians of children with 4 th chromosomal abnormality are eligible for membership. The majority of our records are from the US. Reach out if you have any questions or concerns!* Para informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Sylvia Renfro a (936) 232-4068 o sylvia@4p-supportgroup. Gracias. The 4P-Support Group is a nonprofit organization dedicated to serving its membership by disseminating information, fostering understanding of 4p-syndrome, fostering connections among families, researchers, and professionals, and promoting awareness. Home About Us Parents Professionals Research Store Calendar Links Contact. The 4p- Support Group is a membership owned and operated 501 (c) (3) organization. 4p- Support Group. The 4P- Support Group is a 501 (c) (3) nonprofit organization whose mission is to improve access to chromosome 4p deletion information for parents, family members, and care providers of individuals who have a 4th chromosomal abnormality. This web site was established to assist members in locating resources, communicating with one another, educating themselves on issues relating to 4p- and related syndromes, and participating in other informative activities. The 4p- Support Group has knowledge of over 600 individulas with 4p-/WHS since it was formed over 20 years ago, of which over 200 are living and have a date of birth in 1993 or earlier. 3,109 likes · 1 talking about this. Membership is free. However, we do not need an IRB in order to use the registry data for non-research purposes, such as information needed to create patient care guidelines. nbap hir gije eaxb xm6dh3 k1gtd gtzo kzjn 98ftdv fmbnqi0